[37], Engel frequently traveled to Afghanistan to report on the situation between U.S. forces, the Afghani people, and the Taliban. Henry Engel had Rett Syndrome, which slows development or causes loss of "purposefuluse of the hands, distinctive hand movements, slowed brain and head growth, problems with walking, seizures, and intellectual disability," according to the National Institute of Neurological Disorders and Stroke. Learning to take a few steps in his walker and communicating with cards and a computer.". Engel also talked about his wife and son's strength. I got some books, and the smiles I got from him he was happy, she said. In a 2019 essay about his family, the proud father gushed about an important milestone Henry had just met. I'd add more colorful adjectives, but you get the point," wrote Engel, adding that Henry, who was 4 at the time, "doesn't walk or talk. Engel and his wife are also parents to son Theo, whom they welcomed in August 2019. He had the softest blue eyes, an easy smile and a contagious giggle, the journalist, who is married to Mary Forrest,tweeted at the time. 2020, National Press Club Edwin M. Hood award for Diplomatic correspondence. According to Zoghbi, Henry left a lasting impression on the entire Duncan NRI team and their ongoing Rett research. Powered and implemented by FactSet Digital Solutions. As a geneticist and researcher, Zoghbi also values the moment when Henry met her team of students and scientists researching a cure for Rett syndrome. Longtime NBC News foreign correspondent Richard Engel announced Thursday that his 6-year-old son Henry had died after a lifelong battle with a rare brain disorder. [14] He graduated from Stanford in 1996 with a B.A. [citation needed] He frequently traveled outside Iraq's Green Zone, the fortified international zone in central Baghdad, to report on the genuine state of Iraqi life.[30]. [77][78] Henry Engel was born with Rett syndrome, a genetic disorder that is extremely rare in males; he died in August 2022 at age 6. He attributed his attraction to journalism as "the prospect of learning about new subjects and having the privilege of riding the train of history rather than watching it pass". Henry Engel, the 6-year-old son of NBC News chief foreign correspondent Richard Engel, died last year of Rett syndrome. It was a special time.. When we first met Henry he couldnt stand steady. Engel told PEOPLE in 2019 that Henry was "lacking a conductor gene" and that a medical team at Texas Children's Hospital was "trying to build a treatment that could help immensely.". TODAY's Savannah Guthrie shared her condolences with Engel and his wife, Mary. Richard Engel Says His Son Henry Has 'Taken a Turn for the Worse' Due to Rare Neurological Disorder, Savannah Guthrie Posts Beautiful Tribute to Richard Engel and Wife Mary After Son Henry's Death, Richard Engel Honors Late Son Henry on His 7th Birthday, Gives 'Big Thank You' for Support, Everything Richard Engel Said About 'Beloved' Son's Journey with Rett Syndrome Before His Death, Hoda Kotb Gets Emotional as She Shares Tribute After 'Heartbreaking' Death of Richard Engel's Son, Richard Engel Celebrates Son's 5th Birthday, Shares Message to All Kids with Rett Condition, Richard Engel Reveals Coronavirus Lockdown Has Been a 'Nightmare' for Son with Rett Syndrome, Richard Engel's Younger Son, 1, Takes His First Steps as Big Brother Henry Is 'Cheering' Him On, Richard Engel's Wife Mary Pens Essay About 6-Year-Old Son Henry's Death: 'One Last Goodbye', Richard Gere's 3 Children: Everything to Know, Recovering from Multiple Seizures and Autoimmune Encephalitis, Texas Boy Hopes to Go to 2nd Grade in Person, How This Mother Went to Extremes to Help Her Mentally Ill Son: 'He Knows He's Locked up Because of Mom', NFL Sportscaster and Former Player Irv Cross Had Stage 4 CTE, New Findings Show, Colin Farrell's 2 Sons: Everything to Know, How Bruce Willis' Family Is Helping Him 'Live as Full a Life as Possible' After Dementia Diagnosis, Emily Maynard Johnson Shares Sweet Photos of Baby Jones Wearing New Personalized Cranial Helmet, revealing that "school was the only place where. His cells are being used in cutting-edge research. IE 11 is not supported. We've received your submission. [48][49], On December 13, 2012, Engel and his five crew members, Aziz Akyava, Ghazi Balkiz, John Kooistra, Ian Rivers and Ammar Cheikh Omar, were abducted in Syria. "Mary and I are so excited to introduce our new son Theodore (Theo),'' Engel, 45, wrote in an email to "Today"Monday. His son Henry suffered from a devastating diagnosis of Rett Syndrome. Engel and his wife had been open about the child's battle with a rare. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Richard Engel announced the heartbreaking news that his son Henry has died after a battle with Rett syndrome. A big thank you to everyone who sent kind and thoughtful messages, and donated to support medical research to defeat Rett Syndrome. NBC News chief foreign correspondent Richard Engel announced Thursday that his son Henry, 6, has died. "Hes healthy, happy (unless you unwrap his swaddle) and thirsty. Henry was born with a variation of Rett syndrome, a rare genetic disorder that starts with normal early development, which then starts to slow usually around 6 to 18 months of age, causing loss of use of the hands, problems with walking and intellectual disability, according to the National Institute of Neurological Disorders and Stroke. Tracey Harrington McCoy is a celebrity news writer at PEOPLE Digital. The Engels got in touch with Zoghbi, whos been researching the disease for many years. Richard Engel announced on social media that his 6-year-old son Henry Engel has died after an aggressive battle with Rett syndrome, a rare brain disorder. "To parents with typically developing children, a little Dada may not seem like a big deal," he wrote. The NBC News chief foreign corespondent, who has spent much of his career covering warand political upheaval,announced in an email to the"Today" showthat he and his wife, Mary Forrest, welcomed their second child, Theodore Forrest Engel, over the weekend. Engel added he's looking forward to life as a "Dada"of two. [53], Engel was married to a fellow Stanford student; the couple divorced in 2005. We don't want any other child to lose their life. Engel shared an update on Henry's health in May, noting that his condition had "progressed" and he had "taken a turn for the worse.". The condition also led to dystonia, an uncontrolled shaking/stiffness. You just cant help it. [1] He was assigned to that position on April 18, 2008 after serving as the network's Middle East correspondent and Beirut bureau chief. The father of two admitted he and his wife "were coping better before COVID," revealing that "school was the only place where [Henry] could interact with other children," which was a huge asset for him. By Chloe Govan 17:50, Sat, Oct 1, 2022 | UPDATED: 17:52, Sat, Oct . I cant imagine a child who is showered with more love. According to the National Institute of Neurological Disorders and Stroke, Rett syndrome can cause loss of use of the hands, problems with walking, seizures, slowed brain and head growth and intellectual disability. She recalled that losing Henry was one of the hardest days for her and her research team. [citation needed] He survived kidnapping attempts, bombings, IED attacks, and ambushes. Dr. Zoghbi and Henry from a 2019 TODAY segment. "Dear Henry, you will be missed. [5][6] His father, Peter, a former Goldman Sachs financier, and mother Nina, who ran an antiques store, feared for their son's future prospects because of his dyslexia. He had the softest blue eyes, an easy smile and a contagious giggle. Engel linked to the memorial page in a follow-up post, writing, "Researchers are making amazing progress using Henry's cells to help cure RETT Syndrome so others don't have to endure this terrible disease.". He will always be with us, even now hes hard at work to help other children whose lives are more difficult than they should be, the NBC News chief foreign correspondent said on TODAY. Richard was first married to a fellow Stanford student and parted ways in 2005. There is no cure for the condition, and people with Rett syndrome need care to treat their symptoms. The mutation causes Rett syndrome, "a disorder that typically affects girls after their first birthday, robbing them of learned skills and leaving them with cognitive deficits, loss of speech, and a variety of motor difficulties," the hospital said. While Henrys cells are still being used in her research, Zoghbi stressed that shes learned so much from so many Rett syndrome patients on her path to find a cure. Henrys cells could also advance research for other neurological conditions, such as autism, Zoghbi said in a "TODAY" segment that aired on Thursday. His most recent book, And Then All Hell Broke Loose, published in 2016, is about his two-decade career in the Middle East as a freelance reporter. We always surrounded him with love and he returned it, and so much more," Engel wrote alongside a sweet photo of his son. In the later essay, Engel shared that he "finally got a 'Dada'" from his son. Richard Engel Reveals Coronavirus Lockdown Has Been a 'Nightmare' for Son with Rett Syndrome. So if its not functioning at 100% capacity maybe its functioning at 40% capacitymaybe if we can increase the amount of the protein, maybe that will get us to help some of the symptoms., [Henry] became a driving force in the lab because the lab members met him and knew him and played with him, she added. The interview also focused on Iran's empowerment as a result of the war in Iraq and how to counteract Iran's influence in the region. ", Richard Engel Honors Late Son Henry on His 7th Birthday, Gives 'Big Thank You' for Support, Richard Engel's Wife Mary Pens Essay About 6-Year-Old Son Henry's Death: 'One Last Goodbye', Hoda Kotb Gets Emotional as She Shares Tribute After 'Heartbreaking' Death of Richard Engel's Son, Richard Engel Announces Death of 'Beloved' 6-Year-Old Son Henry, Everything Richard Engel Said About 'Beloved' Son's Journey with Rett Syndrome Before His Death, Savannah Guthrie Posts Beautiful Tribute to Richard Engel and Wife Mary After Son Henry's Death, Richard Engel Says His Son Henry Has 'Taken a Turn for the Worse' Due to Rare Neurological Disorder, Richard Engel Celebrates Son's 5th Birthday, Shares Message to All Kids with Rett Condition, Richard Engel Reveals Coronavirus Lockdown Has Been a 'Nightmare' for Son with Rett Syndrome, Richard Engel's Younger Son, 1, Takes His First Steps as Big Brother Henry Is 'Cheering' Him On, Gilbert Gottfried's Widow Dara Remembers Late Comedian, 1 Year After His Death (Exclusive), 6-Year-Old Enjoys Fundraiser for Her Rare Disease: I Wore 'a Unicorn Onesie and Butterfly Wings! To support the research: https://t.co/M8LV8SHv6r pic.twitter.com/UNnDONMtR1. 2022 CBS Interactive Inc. All Rights Reserved. Arkansas woman indicted for selling stolen body parts to Pennsylvania man. Mary and Richard. [38][39][40], Engel reported on Firebase Restrepo and the soldiers of Viper Company stationed in the Korengal where he showed the fierce firefights taking place between U.S. soldiers and Taliban forces. [42], Engel reported extensively on the Arab Spring movement. In March 2011, Engel was caught in an artillery strike while interviewing fighters during a rebel advancement towards former Libyan leader Muammar Gaddafi's forces outside the city of Ajdabiya. He had a tremor. "His loving and endearing smile, and the way he connected with his eyes, stole my heart from the time I met him. Richard Engel (born September 16, 1973) is an American journalist and author who is the chief foreign correspondent for NBC News. He must have recognized everybody was celebrating him and everybodys excited about it. Savannah Guthrie has shared a touching tribute to NBC News chief foreign correspondent Richard Engel's son, Henry after he died from Rett syndrome, a rare neurological disorder, at age six. Henry interacted with the world through sight, sound, and touch. "Our son Henry was our everything," Engel said in a video about his son aired on TODAY. Engel, 45, announced the news Monday on the Today show,. Thats the nature of this disease.. "He had . After developing dystonia, uncontrollable shaking and muscle contractions, his underlying health conditions got much worse, and soon, "it was too much," Engel said. He had the softest blue eyes, an easy smile and a contagious giggle. [13], He later went to Stanford University, where he occasionally wrote for The Stanford Daily. His muscles are moving. "Our beloved son Henry. 9,366, 2023 NYP Holdings, Inc. All Rights Reserved NBC News presenter Richard Engel has penned a tender tribute to his young son, a month on from his tragic death at six years old. [34][35] In 2008, Engel interviewed U.S. Army General David Petraeus on the progress of the Iraq War and discussed the policies the general attributed to the recent successes in Iraq. Soon after sharing the first video, Engel tweeted another sweet photo of Henry sitting up and looking at the camera. We will keep fighting for you.". Richard's age is 48.He has short brown hair and brown eyes, his height is 6ft (1.85m) and he weighs around 175lbs (80kgs). I worked 16 years to find the (MECP2) gene. We always surrounded him with love and he returned it, and so much more. He was so hardworking and he had to do so much that a child should have to necessarily have to do. Copyright 2023 CBS Interactive Inc. All rights reserved. Georgia Slater. Henry would have turned 7 today, Engel, 49, tweeted Thursday, alongside a photo of Henry. While many media outlets pulled their journalists out of Iraq shortly after shelling began in March 2003, Engel stayed, and was subsequently one of the only Western journalists in the country. His sweet smile, hes so good. Mutual Fund and ETF data provided by Refinitiv Lipper. We always surrounded him with love and he returned it, and so much more. On . He was in the hospital for 6 weeks, but is now home and getting love from brother Theo.. He doesn't sit up straight. Here's how. You hold a baby like Theo and hes wriggling, he told People in 2019. Richard Engel announced the death of his 6-year-old son Henry after his years-long battle with Rett Syndrome, a rare genetic neurological disorder. He never gave up.". [79][80], "About us: Richard Engel - NBC News Chief Foreign Correspondent", "Seven-Pakistani journalists honoured at Newseum memorial re-dedication", "In Iraq, Journalist Richard Engel Sticks to the Story", "High Achieving Dyslexics: Richard Engel", "High Achieving Dyslexics: Richard Engel, Journalist", "Richard Engel on Finding Success With Dyslexia", "Success Stories: Richard Engel, Chief Foreign Correspondent for NBC News", "Richard Engel, Chief Foreign Correspondent for NBC News", "Richard Engel: Covering War for a Decade", "Nominees for the 32nd Annual News & Documentary Emmy Awards Announced by the National Academy of Television Arts & Sciences", "Ukraine: Freedom or Death Putin Invades Ukraine", "Special Program: Journalists Memorial Rededication Ceremony", "Book Discussion on War Journal: My Five Years in Iraq", "Richard Engel Reports: Tip of the Spear", "Will Election Help Women in Afghanistan? Many of the people who work in the lab were also devastated by Henrys passing, but they were quick to tell Zoghbi, Were going to continue to work. Henry and his parents appeared on "Today" in 2018 to discuss the devastating illness and how they were handling it, as well as the potential for future treatments. [20] The same year he toured and reported on the city of Mogadishu, Somalia, for a segment titled "The World's Most Dangerous City", for which he would receive a News and Documentary Emmy Award nomination. Our beloved son Henry passed away. MECP2 is found on the X chromosome,according to the National Institutes of Health, which females have two of, so its even rarer and more severe in males because they only have one X chromosome, explained Zoghbi. RELATED: What is Rett syndrome? 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